Showing posts with label coping with illness. Show all posts
Showing posts with label coping with illness. Show all posts

Thursday, December 9, 2010

Cold, Christmas, and Comfort


For people who have trigeminal neuralgia, Christmastime can deliver a double whammy. The pain caused by the cold can be paralyzing, making work and social interaction burdensome. Sometimes just surviving the pain is the best one can do.

Just when we're expected to enjoy "Walking in the Winter Wonderland," we are forced to retreat. The best time of year sometimes becomes the cruelest. And this is true for many, not just for people who have facial pain. The pressure of expectations weighs heavily on our minds, hearts, and spirits.

We're not going to be perfect, our friends and family aren't going to be, and perhaps the holiday will be less than idyllic. And that's okay. The key to surviving the imperfection is to find solace.

Finding comfort in one's situation can seem impossible, but it is doable. One way to start is to trim our list of activities. If you've gone to the neighbor's Christmas party and taken your special homemade divinity every year, it may have become an expectation. Expectations equal pressure. When we decline an invitation to a gathering, we often hear and sense others' disappointment. But we can get past it.

We must take care of ourselves. People tell one another to do this all the time, but often the phrase is uttered without considering its meaning. This Christmas, let's embrace the message.

Take care of yourself.

To fend off depression that can result from facial pain and as well as holiday stress, make a plan. Take a mental inventory of things, tangible and intangible, you find comforting. Write them down. Find them if you don't know where they are. Be prepared to spend a few hours alone when the rest of your family is socializing.

Need some suggestions? Make a list of music for your I-Pod especially for this time, a list that may include anything from tear-jerking songs to happy holiday tunes. You've experienced a full gamut of emotions in your life, and it is acceptable to feel them now. Believe you will have better times, less pain in the future. Unless we believe things will get better, they won't.

Put your favorite DVDs by the player. Brew a pot of your favorite tea or coffee. Peruse your favorite photo album. Prepare an online list of the funniest videos you've seen on YouTube, and have them ready to make you laugh.  Have something to read that's easy and brings you comfort.

Now is the time to schedule ways to connect with people we love. If your family or friends are distant, make a date to text them if it is painful to talk. If not, make a date to Skype or call someone special.

Recognizing our limitations also helps us let ourselves off the "expectation hook.' Sometimes getting out or pushing through can help us feel better, but sometimes it makes pain worse. No one can make these decisions for you. You are the best judge, the best predictor of the outcome. It's important to resist the pressure of going along with everyone else if you believe the activity will trigger more pain. Stand your ground: take care of yourself.

As individuals, we find solace in different ways. What brings you comfort? Your comment may help someone else.

Have you visited my website? www.withgreatmercy.com

Thursday, July 29, 2010

Hospital Zone, respite, and answered prayers


In the past week, my Mom has needed emergency care twice. Yesterday my daughter had major surgery, and she had a procedure that lasted several hours. I hugged her at 10:30 a.m. and did not get to see her again until about 5:00 pm.. Last night, I slept in a chair in her hospital room.

Today I came back home ( a 1.5 hour drive) only to learn that my Mother needed to go back to the same area I just left so she could get treatment for her own emergent medical situation. Because I had very little sleep last night, I called my uncle, and took my mom back part of the way, not far from his home. He took my mom to the opthamologist, and I came back home to rest. Although I offered to pick my mother back up at his house, my uncle gladly brought her back home after her treatment was accomplished.

The good news is that both my Mom and daughter will both be fine, and I appreciate everyone's prayers. I'll be blogging about trigeminal neuralgia and facial pain soon but I'm going to take a couple of days to get some rest. A caretaker's stress can be high, and I remember the days when people took care of me. I'm glad I have a chance to give back a little caregiving in return.

We all have limits, and it's important to recognize them. Today I knew I was not the best candidate to take my Mom for treatment. It's not easy to let go, but one person cannot carry all the weight. If you are caring for someone who has trigeminal neuralgia or an extended illness, get support for yourself. You will need a respite, a chance to rest or take care of yourself. Emergent situations shouldn't overlap, but sometimes they do.

Thanks again for your thoughts and prayers. A big shout of thanks I give to my friend who put me up for then night preceding my daughter's surgery. As Claire Patterson, the founder of the Trigeminal Neuraglia Association has been known to say: only the nicest people have facial pain. It's not a direct quote, but she's right.