Showing posts with label career. Show all posts
Showing posts with label career. Show all posts

Wednesday, May 19, 2010

Care for me, feed me, visit me

prison faces

I was naked, and you gave me clothing. I was sick, and you cared for me. I was in prison, and you visited me. Matthew 25:36

I’ll never be able to thank God enough for the way my mother took care of me when I had trigeminal neuralgia. She wouldn’t let go of me; my mother was determined to defeat the pain. Her determination and faith spread to me, and that is how I got well. Although the process wasn’t simple, the premise is: Lord, I believe You will make this pain go away. How can people believe such a thing when it feels as though the face is being electrocuted over and over and over?

As I fought the good fight of faith, I remember feeling as though my body had imprisoned me. I wanted to escape it, but I couldn’t. I found solace in a song that Dottie Rambo wrote, “The Holy Hills.”

This house of clay is but a prison
Bars of bone hold my soul.

How desperately I wanted to escape the prison, but I couldn’t. Captured by pain, I sought hope. If nothing else, I knew that the present sorrow could last only a lifetime and not for eternity. That’s how Dottie’s song encouraged me:

But the doors of clay are gonna burst wide open
When the angel sets my spirit free.
I'll take my flight like a mighty eagle…

I longed for a day of freedom, either by way of healing or through death. The thought of my death didn’t depress me, and it still doesn’t. It’s simply a longing to be in a better place.

The pain is gone, but I can’t forget about others who are suffering. I can’t forget, either, about people who are in prison. I’m involved with Prison Fellowship Ministries, and what a blessing it’s been. I’ve been teaching Set Free by Jan Coates to a group of women who are incarcerated. It’s about overcoming childhood abuse, and the curriculum is wonderful.

When I first met the group of women, I told them that I had never been arrested or in custody but I know what it’s like to be imprisoned by pain. They could relate to that, and I can relate to them. We all need someone to minister to us, whether it’s a need for food, clothing or shelter; a need to be attended; or a need to be visited when we’ve been punished. Think of someone who helped you along the way, someone you didn’t know well. For all the people who helped me – and there have been many – thank you. Because you helped me, I can visit people who are in prison.

Monday, January 18, 2010

Like a green olive tree


But I am like a green olive tree in the house of God: I trust in the mercy of God for ever and ever. Psalm 52:8.

To understand why this verse might be significant for a person who experiences so much pain, it is necessary to know the characteristics of a green olive tree. This robust tree can live for centuries, even in dry, barren, and rocky places. To harvest the olives in Biblical times, the green olive tree would be beaten with sticks to knock the fruit from its branches. In spite of that, the tree would continue to produce new fruit. The strength of this tree comes from its roots, which go deep into the earth. The green olive tree’s roots are so deep and so strong that they survive even if the trunk is burned or cut down. The roots will send up new shoots, and they will bear fruit. The green olive tree knows how to survive and thrive even in the harshest of environments.

If you live with trigeminal neuralgia or other types of face pain, you have experienced a hostile environment. Years ago I felt that my body had become my own prison. By God’s grace, I was released from the pain. I went back to a “normal life,” and was teaching a Bible study for the ladies’ group at my church. In the course of the study, we discussed Psalm 52:8 and another verse about an olive tree, Deuteronomy 24:20. When thou beatest thine olive tree, thou shalt not go over the boughs again: it shall be for the stranger, for the fatherless, and for the widow.

I cautioned the ladies to preserve some of the fruit that they bear for people that God will send to them. It’s so easy to get depleted, to have every piece of fruit (or every bit of energy) taken from us. Today’s demands are heavy: careers, children, aging parents, ministries, volunteer activities, and church functions. The list is endless, and our heavy obligations can leave us with no time or energy to help someone that the Lord puts in our path. At the time I wasn’t working, but a few months later I returned to the work force.

Last March, I went on a business trip to meet with a group of people who were experiencing facial pain. A couple of hours before I departed, I was gripped with terrible pain. It radiated from my jaws and into my face. The pain left during the last leg of the flight, but when I arrived at my destination I was exhausted. I enjoyed the visit, and it was soon time to return home to Florida. I was on a tight schedule, with an appointment the day after my return.

I learned that my schedule was going to be much tighter than I expected. The weather caused flights to Florida to be cancelled for the day. I left the airport and went to a nearby hotel. The first thing I did when I walked into my room was take the Gideon’s Bible from the desk. I don’t ordinarily open the Bible and read it where it falls, but on this day I was desperate. I wanted a word to calm my frustration. I looked at the open page and began to read Deuteronomy 24:20. Tears fell down my cheeks as I realized that I had ceased to bear fruit. I had nothing left to give to strangers, to the fatherless, or to widows. In fact, I had nothing to give to my family. I was always in need of their strength and support.

I surveyed my life that day and realized that my roots had not found the nourishment they so desperately needed. In Gainesville I had not found a church that I could call “home.” I was living away from my family and saw my husband only on the weekends. I missed him terribly. My noisy neighbors got home from work every morning at 3:00 a.m., and sleeping through the night was difficult. Worst of all, my own pain continued to increase.

Had I forgotten about God? No. I still read my Bible each morning. I was sad because life had become so difficult. I wondered why I was having so much pain in my jaws and neck, and I longed for home. I faced this fact: circumstances had beaten me down.

That day in the airport hotel, I asked God to restore me. Because I had experienced trigeminal neuralgia, I knew that that the current pain was very different. It wasn’t long before I began to notice some things that pointed to the root of my facial pain. For example, my teeth, which had always been straight, had become crowded and crooked.

In the diagnostic process, the facial pain and jaw dysfunction grew worse. I could not continue working, but I had answers about the root of the pain. Having a diagnosis gave me some relief, but it did not make the pain stop. It was clearly caused by my jaws, which were often locking shut. I resigned from my job and stayed home. Several months went by before I began to feel better. My body rebelled if I moved around a lot, so I stayed still. Very still.

Sometimes the Lord wants us to be still, to wait for Him. Sometimes we have no choice. It was while I stayed still that I could really focus on Jesus. My roots began to receive the nourishment they needed. Jesus is my source of strength, the One who helps me grow.

Although I was overwhelmed and beaten, my roots had not died. Your roots are still alive. You can also experience growth and restoration. We are like green olive trees, and the Lord wants us to bear fruit. We will be able to help the widow, the fatherless, and the stranger once again… with God’s help.

Have you read With Great Mercy?   A follow-up post to the green olive tree is available.

Wednesday, September 9, 2009

Loss Part 3: Identity

loss identity blog sidelines

Do you ever feel as though you are sitting on the sidelines of your own life? It's not unusual for people who experience pain and disability to feel as though they have somehow lost themselves. I remember not wanting to believe that I had changed, but I had. Many of my strengths had turned into weaknesses. Some of my abilities had become disabilities. I was in the middle of my life and didn't know where to go or what to do next. All I knew was that I didn't want to stop but had to. I loved teaching drama, but I had to let it go.

Quick wit, the ability to concentrate, and physical prowess can seem to evaporate if the pain comes to stay. Medications to help facial pain can cloud our concentration, obscure our ability to respond quickly, and cause physical issues such as balance and sluggishness. Career and volunteer activities may become a drain instead of a challenge.

If we have trigeminal neuralgia, neuropathic, or orofacial face pain, we may begin to experience social isolation. This can be spurred by the environmental barriers that are unique to people with face pain: breezes that cause electrocution-type pains and noise or vibration that causes the pain to strike. Isolation and loneliness can also be caused self-consciousness. Some individuals gain weight with face pain, especially because of some of the medications' side-effects. Others may be unable to brush their teeth or receive dental care on a regular basis.

Things that seemed so intrinsic - like a beautiful smile- now seem to escape us, things like a career or a desire to grow a family. The losses caused by pain can be distressing, but there is hope. Hold onto it. Don't let go.

Finding the best treatment takes a while because of the idiopathic nature of the pain. What works for one person doesn't work for another. Medications that seem to turn us into "zombies" also require a period of adjustment. Ten years ago, when I started taking an anti-seizure med, the trigeminal neuralgia pain left. I slept like crazy for three months. Then the feeling of sleepiness left, and the pain stayed away. (Can I tell everyone how disappointed I was when I developed an allergy to this medication?)Another thing that takes time is prayer. We normally don't get answers overnight. A period of waiting is almost always involved. Hold onto hope. Hold onto your faith. Continue to wait.

Waiting is one of the most difficult things we can do. Being in limbo places even more pressure on an individual who has experienced so much loss. It is important to remember this: we have changed but we have not lost ourselves. We have not become someone else.


The challenge we face is learning how to make the best of our lives after we have experienced losses associated with facial pain. There are many ways to do that. One way is to address career concerns. Every state in the U.S. has a vocational rehabilitation program that receives federal funds. It's there to provide education or training for people who have disabilities. People with face pain qualify. Because trigeminal and neuropathic facial pain are rare, you might want to prepare information for the rehabilitation counselor who will interview you. Make a list of things that cause you pain, such as talking, sitting in air conditioning, or being in a noisy environment. If you are having issues caused by medication, list those also. If you are employed and want to stay with your company, the Job Accommodation Network (JAN) can help you and your employer make arrangements to help you stay where you are. JAN is part of the US Department of Labor. They have a website and a toll-free number.

One important thing to focus on is what you can do, not what you cannot do. I've been in situations that were overwhelming. It's hard to recognize the need to make a change. Letting go doesn't mean losing. It can mean that we are going to find a new and better way.

Call me crazy, but I think the world would be a better place if everyone were to experience trigeminal neuralgia for just one day. We'd live on a more compassionate environment. We'd have more empathy for others. People with face pain have learned how precious life is. It's something we can teach others. Even in the midst of our pain, we can help make the world a better place.

I want to thank the Lord for answering so many of my prayers. When I lose one thing, He always gives me something better. It takes me a long time to recognize the blessing, but it is always there.